I guess that is what I would call it…Ignorant bliss. I choose to ignore what is right in front of me. But the truth is, the definition of ignorant bliss is, NOT knowing about the problem and not worriying about it. I know what the problem is!! I am just trying to to the “bliss” part.
I went for a bone marrow biopsy last week. Didn’t talk much about it… Maybe people are sick of hearing my medical crap. I guess maybe I feel if I don’t talk about these things they will disappear. I’m not that stupid, or ignorant. I just want to live one day without dealing with all of this medical shit,
I mean, give e a break…It is 6:00 in the morning and I have not slept for one single minute. I lay in bed and try to sleep but it just is not happening for me. So, what do I do at 3:00 in the morning when I’m wide awake? I take a shower, blow my hair, and then record myself reading children’s books hoping someone out there is going to enjoy them.
Ever since I left teaching I feel like I have lost my purpose in life. I was always one to try and figure out why I am here and what I am supposed to learn but for a while I lost my mojo. I had been teaching for over 18 years and now I don’t. That is it…now I don’t. I spend time at dialysis and going to doctors. That is the majority of what I do. Where is the purpose in that? Where is my purpose?
So a few weeks ago my mom started a business from home. She is selling doTerra Essential Oils, and Pampered Chef, jewelry, and UsBorne books. That is where I come in. I can’t do much but I can read books. For God’s sake, I have a masters in Reading. Let me do something that makes me feel useful.
And so at 6:11 in the morning I record myself reading because there really is nothing else to do at this hour. I could sit and get myself sick waiting for those biopsy results, but that is foolish. So I will continue to try to live in bliss, try to live my best life, and continue reading to children.
By the way, check out SCENTSible SOULutions on FaceBook!! Mom has some great products!!
What was I supposed to learn today? What was the point of today’s race to pack bags and start our trek across Florida? Did you want to see how fast I could gather my belongings? Did you want to see how fast mom could walk up a flight of stairs to tell me Tampa General Hospital Transplant Unit was calling for me? Did you want to see me cry for the 40 -year- old man who died way too soon? Were you testing my theory that all good things in my life eventually shatter? Well, for the record, I really like this guy I am seeing, so unless you are giving me your blessing, please leave that relationship alone.
I am trying so hard not to lose my faith in you but you are making it very difficult. Remember about 20 years ago when I was married to that abusive man and I go t really sick? Even back then I asked you what I was supposed to learn from what I was going through. OK, OK…you are right…I learned what that lesson was about, and I spent years of my life working with children who suffered from anxiety and did my best to help them through it.
I have tried so hard to be a good person and do the right thing. I know I curse a lot and I would apologize for that but I feel that I use it with justification. Do I not pray enough? Should I call Rabbi Amy more often? What is it that you want me to do? I live my life with such anxiety that I struggled to enjoy the life you gave me.
So, a few hours have passed and I am revisiting this letter. I am not deleting the previous comments because they are real, raw feelings. But I have had time to think and I have had a lot of people reach out to me. If there is one thing I know for sure, I am definitely loved here on earth. The messages of love, hope and encouragement are what keep me going. Kiley keeps me going. Thank you for her!!
God, I want so badly to believe in you! So, I am going to go to sleep tonight next to my niece knowing that someone out there received a kidney today! And like my friend Lisa said, that person needed it more than me and my time will come.
Palm Beach County reopened on Monday. Stores, restaurants, salons and many other businesses will begin to rebuild with the help of our community. I am sure that this is a blessing for most residents in Palm Beach County. I, on the other hand, along with thousands of others are not ready for phase one. I still need to stay home due to my disease. The National Kidney Foundation suggests that transplant patients and dialysis patients continue to stay quarantined due to our weak immune systems. While this is commonsense, it is difficult to adhere to.
So, I continue to go to dialysis three times a week. This is my time to get out of the house. I arrive and wait outside until a nurse comes and takes my temperature. She asks me the same questions before I am allowed to enter the building, “Have you been outside of the country? Any coughing? Fever? Have you been around anyone who is sick?” And my responses are the same, “No, no, no, and no”. I am now alowed to enter the building, well, once I put on my mask. I walk through the lobby and into the main area. I step on the scale and then make my way to my dialysis chair. I learn that a patient died this week. He was a young man, much younger than me. I realize that his death has probably somehow touched every person in that room. I know for sure it hit me really hard. Could I be next? Will my dialysis chair be empty one day soon? All over Facebook The National Kidney Foundatiuon warns of the danger that the Corona Virus can have on your kidneys. It seems that every where I look my kidney disease is in my face, and not in a good way.
In spite of what is happening around me, I have the power to turn things around. With the help of a newly found friend I have been able to spread the word regarding my need for a donor. Finding a match will be difficult for me, as my body has built up antibodies since my previous transplant but, talking with Ned really helped propel the need to get my story out and with that I contacted a local reorter who had interviewed me years ago when I was nominated for the Dwyer Awards in Palm Beach County. Yesterday, I recieved a text from Kristen Chapman, of CBS12, telling me she was interested in my story and asked if I was available for an interview. two hours later we are sitting on the couch and I am telling her my story.
While all of this was happening, MJ Events and Promotions was creating shirts for family and friends to wear to spread the word. (If you are interested in helping me find a donor you can order a shirt/sweatshirt/hoodie at www.stacyneedsakidneystore.com)
Things began moving at a quick pace. Within hours I was interviewed live on FaceBook and then had a quick segment on the CBS12 News.
In the midst of this campaign to find a kidney donor my sister created a fundraiser to help with medical bills, pharmaceuticals, and other expenses that continue to add up. I am truly in awe of the outpour of support I have been receiving from family, friends and strangers. I am blessed that so many people believe in me and I am so thankful to all who have decided to board this train and take this ride by my side.
Sometimes I get down about my illness. I lose hope and get angry, but that, I have learned, is normal. And then suddenly these strangers that I mentioned, are writing comments of bravery and prayers. People I don’t even know!! And I’ll be honest, I click on their profile pic so that I can put a face to the beautiful words they write. I believe that people come into our lives for a reason even if that reason is not clear right away.
So, as Palm Beach continues to move through Phase One of this quarantine, I am ok with staying home and taking care of myself. I know that there is magic happening behind the scenes for me.